Pirate Amy

Hi! My name is Michelle. I have been diagnosed with multiple auto-immune diseases as well as a cluster of other physical and mental conditions. Stiff Person Syndrome and Lupus are currently making the biggest impacts on my health and life. I have a wonderful team of Doctors at Vanderbilt University who work together to help me be the healthiest, best version of me that I can be.

I don’t let my physical or mental ailments define me. Infact I strive to defy them. I am a wife to the most caring, incredible husband/ caregiver that any girl could dream of. We have an incredibly gifted son who is full of empathy and compassion and shares my desire to raise awareness. 

I live just outside Nashville in an average house, in an average subdivision. We share our home with a dog named Pup, my therapy cat, Kitty and her two pals Peggy and Izzie. 

I have a strong desire to raise awareness for Stiff Persons Syndrome and other rare diseases. Sometimes the desire is so strong and weighs so heavily on my heart that it causes depression. I can’t help but to think of all those who are facing these struggles alone, who are searching the Internet for answers and finding outdated or incorrect information. 

I hope to provide information, inspiration and advice to others who are have similar struggles to mine. I want to virtually hug all the newly diagnosed and let them know “You are going to be ok!”. 

Someday I hope to reach beyond my blog and make a bigger impact on the Stiff Person Syndrome Community. My long term goal would be to unite the community as a whole where conversations were fluid and everyone could benefit from information shared.

These are the diseases, syndromes, illnesses I have BUT, they don’t have me!

  • Stiff Person Syndrome
  • Lupus
  • Fibromyalgia 
  • Osteoarthritis 
  • Tachycardia 
  • Arythmia
  • Insomnia
  • Parasomnia 
  • Hypersomnia (yes you can have both)
  • Nomnomnomia ( it’s not a real thing but I eat and drink in my sleep, even dangerous things, I’m well acquainted with poison control 😉)
  • Restless Leg Syndrome
  • Frontal Lobe Epilepsy ( with damage to my left frontal lobe)
  • Depression
  • General Anxiety Disorder 
  • Social anxiety
  • Panic Disorder
  • Agoraphobia
  • OCD
  • ADD

If you have Stiff Person Syndrome you can chat with me or others at:

Facebook: search for “The Original Stiff Person Association”

RareConnect.org – there is a Stiff Person Syndrome community, also a helpful resource for any rare disease.

If you want to find me on any of my other social medias, Twitter: @amyholmanturner and Instagram: a.michelleturner 

If you’ve made it this far I appreciate your support and wish you the best in all your life’s endeavors!

 Do all things with love!

5 thoughts on “About

    • Well mine knock me off my feet but I don’t have a very strong foot hold to start with. Each of ours have different personalities and they each prefer a different member of our family. The smallest one sleeps between my feet at night. I don’t know what I would do with out them.

  1. Hey! I got a follow from you on Twitter and wanted to come check out your website. I think your story is unique and it makes me smile to see people who are so positive through all of the bad in life. I wish you lots of creativity in your crafting and good luck with your blog! 🙂

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